Author Archive

Day +3641: It comes and goes in waves…

Thursday, November 19th, 2020

“It always does, always does We watch as our young hearts fade Into the flood, into the flood… 11/29/2020: Vidaza cycle 2 (or 23), day 4 of 5. This treatment week has been difficult, nothing specific or dramatic but a general feeling of fatigue and physical unwellness. This, in turn, has affected my mood. However, […]

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Day +3619: There’s been a lot of pressure building…

Wednesday, October 28th, 2020

”…Clouds dark and static From the silence you might never tell But we’re in for a drama Sci-clone…” 10/28/2020: I finally updated the Cytogenetics page today. The image above is a normal female human karyotype. More than three or four abnormalities are considered complex. My nine are discussed on the updated page. Complex karyotype indeed! […]

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Day +3612: Slowly moving through my system…

Wednesday, October 21st, 2020

“…Breaking all of my defenses with time You’re just like poison and I just don’t get it How can something so deadly feel so right? I’m not sure of what to do it’s a catch 22 cause the cure is found in you I don’t want it but I do You’re just like poison…” 10/21/2020: […]

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Day +3610: Is this poison?

Monday, October 19th, 2020

“(Are you where you want to be?) Is this poison? (Is it everything you need?) Is this poison? (Are you where you want to be?) Is this poison?…” 10/19/2020: I restarted Vidaza treatments today, a familiar procedure for me after 11 cycles pre-transplant and 10 more post-transplant. Everything was pretty much the same as I […]

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Day +3603: I feel it all around…

Monday, October 12th, 2020

”I feel it in my bones… My life is on the line When I’m away from home When I step out the door The jungle is alive I do not trust my ears I don’t believe my eyes I will not fall in love—I cannot risk the bet ‘Cause hearts are fragile toys—so easy to […]

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