Day +2996: I know all there is to know about waiting…

“Never mind a quick disintegration
Wind will carry you just like a leaf
Like a guide that’s broken captive from a string
So much to remember when the day ends
So much to forget when you’re afraid
After all the troubles and the breakage
I know all there is to know about waiting
Waiting, waiting, waiting….”

2/12/2019: Last week’s biopsy went smoothly – 5:30am arrival, 7:30am procedure, home by 11am, comfortably medicated and with instructions that included soft diet for two weeks. According to Michael, my surgeon was very happy afterwards. She thought everything looked good although there was a “mysterious blood spot” so she took an extra sample. And then, as usual, we waited…trying to remain optimistic for that difficult space in between biopsy and results.

Happily, we didn’t have to wait too long, just six days. Better still, all results are benign:

INTERPRETATION AND DIAGNOSIS: (lmr) 02/07/2019 @ 07:37 pm
1. RIGHT BASE OF TONGUE (BIOPSY): BENIGN SQUAMOUS MUCOSA WITH NECROTIZING SIALOMETAPLASIA AND FIBROSIS.

Since we had no clue what this meant beyond that all important word BENIGN, some quick research revealed:

Necrotizing sialometaplasia (NS) is a rare benign, ulcerative lesion, usually located towards the back of the hard palate. It is thought to be caused by ischemic necrosis (death of tissue due to lack of blood supply) of minor salivary glands in response to trauma. Often painless, the condition is self-limiting and should heal in 6–10 weeks. It occurs more often in men in the fourth decade of life. Although entirely benign and requiring no treatment, due to its similar appearance to oral cancer, it is sometimes misdiagnosed as malignant. Therefore, it is considered an important condition, despite its rarity.

We had a good laugh as soon as we saw RARE – yep, I’m still the outlier. We strongly suspect a connection with ongoing GvHD.

I close with another tagline, dedicated to Michael who has undoubtedly suffered way more than I have through this recent branch in our continuing journey.

“You’re the meaning in my life
You’re the inspiration
Wanna have you near me
I wanna have you hear me saying
No one needs you more
Than I need you…”

Love to all,
Karen

p.s. Next post will be tag line identification for this and several previous posts. Get your guesses in now.

2 Comments so far

  1. So relieved for you! Once again you can exhale. Take care.

  2. Kathy Scott on February 12th, 2019 at 10:36 pm
  3. Wooohooo!!

    Closing song is Chicago, the name is there in the 2nd line – or maybe it’s just Peter Cetera, solo.

    The last few prior to that are unknown to me, until we get back to the Victor/Victoria post!

  4. Chris on February 13th, 2019 at 7:59 am

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