Author Archive

Day +3941: Ode to Azacitidine…

Tuesday, September 14th, 2021

”You used to be the bestTo make life be life to meAnd I hope that you’re still out thereAnd you’re like you used to beWe’ll have ourselves a timeAnd we’ll dance ’til the morning sunAnd we’ll let the good times come inAnd we won’t stop ’til we’re done …” 9/14/2021: Day 1, Cycle 1 [28]. […]

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Day +3938: It seems like I’ve been here before…

Saturday, September 11th, 2021

“…I can’t remember whenBut I got this funny feelingThat I’ll be back once againThere’s no straight lines make up my lifeAnd all my roads have bendsThere’s no clear-cut beginningsAnd so far no dead-ends…” 9/11/2021: As Michael indicated, Thursday’s biopsy did not go well. I was all set to contribute extra marrow for an ongoing MDS […]

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Day +3817: Waiting for a new day…

Thursday, May 13th, 2021

”To wipe away the Uncertainty That flows around me Once again to stay So many choices but so few answers My time slips away while thinking too much…” 5/13/2021: I decided to get a spine biopsy instead of waiting for a repeat MRI or CT scan, thinking it would either provide us more immediate peace […]

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Day +3790: To the left to the right, round and round and out of sight…

Friday, April 16th, 2021

“… Up and down, side to side searching all over far and wide, I was sitting at the station waiting for my train to a new destination to relax the strain, Call it a holiday, call it a break, it’s just something to save me for savior’s sake, And I’m not looking for trouble, I’m […]

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Day +3775: This is for my outliers…

Thursday, April 1st, 2021

”…this is for my people. Living on the fringes, trying to figure out how to mend this Desire to really thrive while trying to improvise…” 4/1/2021: I had a surprisingly good meeting with my transplant doctor at Johns Hopkins today. It’s my first visit in 18 months – all of our communication has been via […]

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