Author Archive

Day +3775: This is for my outliers…

Thursday, April 1st, 2021

”…this is for my people. Living on the fringes, trying to figure out how to mend this Desire to really thrive while trying to improvise…” 4/1/2021: I had a surprisingly good meeting with my transplant doctor at Johns Hopkins today. It’s my first visit in 18 months – all of our communication has been via […]

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Day +3759: Tell me, why’d you have to go and get me so constipated?

Tuesday, March 16th, 2021

”’Cause right now I’d do anything to just get my bowels evacuated. In the bathroom. I sit and I wait and I strain and I sweat and I clench and I feel the pain. Oh, Should I take laxatives of get my colon irrigated?” 3/16/2021: First, a big thank you to Michael for writing last […]

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Day +3732: All the trauma’s in remission…

Wednesday, February 17th, 2021

” No, I don’t need permission Feels so, feels so, feels so good to dance again Feels so, feels so, feels so good to dance again…” 2/17/2021: At 9:44 p.m. I received a lovely one line email from my oncology nurse practitioner: ”Cytogenetics were normal.” Celebratory ice cream with sprinkles followed immediately. My leukemia is in […]

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Day +3732: The waiting is the hardest part…

Wednesday, February 17th, 2021

”Every day you see one more card You take it on faith, you take it to the heart The waiting is the hardest part…” 2/17/2021: My fifth (26th) Vidaza (azacitidine) cycle was last week, pretty much a repeat of the previous four. I’m still weak and itchy all over but otherwise feeling great as my […]

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Day +3717: Let the storm rage on…

Tuesday, February 2nd, 2021

”The cold never bothered me anyway It’s funny how some distance Makes everything seem small And the fears that once controlled me Can’t get to me at all…” 2/1/2021: Let it snow! How many times have I uttered that controversial phrase? I love snow. We don’t get a bunch in Maryland, some years only a […]

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