Archive for the 'B. Marrow Transplant' Category

Day +3775: This is for my outliers…

Thursday, April 1st, 2021

”…this is for my people. Living on the fringes, trying to figure out how to mend this Desire to really thrive while trying to improvise…” 4/1/2021: I had a surprisingly good meeting with my transplant doctor at Johns Hopkins today. It’s my first visit in 18 months – all of our communication has been via […]

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Day +3759: Tell me, why’d you have to go and get me so constipated?

Tuesday, March 16th, 2021

”’Cause right now I’d do anything to just get my bowels evacuated. In the bathroom. I sit and I wait and I strain and I sweat and I clench and I feel the pain. Oh, Should I take laxatives of get my colon irrigated?” 3/16/2021: First, a big thank you to Michael for writing last […]

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Day +3754: And a woman needs a man…

Thursday, March 11th, 2021

“… Like a fish needs a bicycle When you’re tryin’ to throw your arms around the world…” This is an R&R post; in this world, R&R is Relapse & Remission. Karen is one day away from completing chemo cycle six or in the aggregate cycle 27. Her yesterday just sucked, a general malaise permeated her […]

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Day +3732: All the trauma’s in remission…

Wednesday, February 17th, 2021

” No, I don’t need permission Feels so, feels so, feels so good to dance again Feels so, feels so, feels so good to dance again…” 2/17/2021: At 9:44 p.m. I received a lovely one line email from my oncology nurse practitioner: ”Cytogenetics were normal.” Celebratory ice cream with sprinkles followed immediately. My leukemia is in […]

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Day +3732: The waiting is the hardest part…

Wednesday, February 17th, 2021

”Every day you see one more card You take it on faith, you take it to the heart The waiting is the hardest part…” 2/17/2021: My fifth (26th) Vidaza (azacitidine) cycle was last week, pretty much a repeat of the previous four. I’m still weak and itchy all over but otherwise feeling great as my […]

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