Day +127: Have a big dinner, have a light snack….

“If you don’t like it you can’t send it back.”

I know I’m sounding repetitive but food continues to be my enemy. My tongue remains heavily coated and changes color based on what I’ve last eaten. No amount of scrubbing with the toothbrush seems to make any difference. I struggle through my meals daily, making myself eat despite everything tasting bad because I get more nauseated if I don’t eat enough. I’ve learned to go for textures. My mouth is extremely dry, so meat and breads tend to turn into something resembling wet sawdust that packs itself around my gums and teeth. Soups and smooth, creamy foods are much better. It also helps to drink a cup of hot herbal (chamomile or mint) tea with meals. Many thanks to those who have brought us food. It’s a nice break for Michael from cooking and keeps cooking odors to a minimum. My skin and eyes also continue to be very dry but eye drops and lotion make these issues easy to manage. I’m grateful that of all the post transplant anomalies I could be experiencing, what I have is very trivial, basically day-to-day nuisances. I wouldn’t keep mentioning them but if others are going through something similar, I thought it might help to know that you aren’t alone. Truly, it is wonderful to be able to continue enjoying a fairly normal life.

I saw my hematologist and had blood work done today. He agrees that everything seems mostly the same as last month. We were both happy to see that my white counts have risen back into the normal range and to know my ability to fight off infections is improved even though my immune system is still compromised.

Today’s blood counts:

WBC: 4600 (norm 4500-10500)
Granulocytes (~ANC): 3400 (norm 1400-6500)
Platelets: 238 (norm 150-450)
RBC: 3.58 (norm 4.00-6.00)
HGB (hemoglobin): 11.7 (norm 11.0-18.0)
HCT (hematocrit): 36.1 (norm 35.0-60.0)

I’m working a little. Luckily my business is part-time and I still have my niece, Susanne, helping me keep up. Last week, the Vidaza hit me a little harder than usual with fatigue, aches and pains, so I didn’t accomplish that much. But I’m happy to report that I finally finished and filed our income taxes! Refunds are imminent.

The cats got a new “cat house” which Maya and Tommy have claimed as their own. The others all tried it out but the red cats have settled in to stay. I’ll try to post a few snapshots of them tomorrow.

My current iPad obsession is nonogram-type apps. I’ve done them by the 100’s. These are logic puzzles, filling in selected squares on a grid based on numeric clues, to complete a simple picture. For anyone who spends a lot of time convalescing or waiting in hospitals and doctors’ offices, I highly recommend the iPad (I have the original but version 2 recently hit the stores). Apps are available at reasonable prices to suit every taste. My favorites are the plethora of word games and logic puzzles. It’s also handy for web surfing, checking email, updating blogs, reading, watching shows, etc. The large screen is easy to read and eliminates the “fat finger” problems I have with the smaller touch devices. No, I am not being paid to say any of this!

Oh, I also traded in my old DSi XL for the new 3DS. I haven’t done much with it yet but the 3D does look amazing without the need for glasses.

Day +118 tagline:
Spring, John Denver (no one IDed)


  1. Golly! Just think. If I lived closer to you and was bringing you dinner, you wouldn’t even know I was a bad cook. LOL It was nice that David fixed dinner tonight. He made homemade soup. It was good. He is a much better cook than me. So if we lived closer to you, you would want to ask him to fix the dinner.

    Glad you are able to get some work done and still find time for the iPad. I still dream of owning one. Maybe someday. There are so many different choices, that I have no idea which would be the best one to get. iPad, Nook, Kindle, etc. They sure make it difficult. Don’t they.

    I hope your tongue gets the kinks out of it. That has to be a real nuisance.
    Love you.

  2. Karen, you crack me up! I think about all the neighbor kids around here with DS’s, and all I think about is how they’ll probably all want the 3DS for Christmas. And then you come along, a certified grown-up and you already have one! It makes me smile. I hope things get better with your taste and tongue soon!

  3. Looking at your blood values from the front side of a STTransplant – they sure look good. Hope that you can keep going on soup and mashed potaotes!

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