Day +181: I’ve poured out the pleasure and dealt with the pain…

Happy Memorial Day to everyone and happy six month anniversary to me. Hard to believe how quickly these six months have flown past! We’re headed over to my niece’s for a celebratory cookout shortly.

I completed my 4th post transplant Vidaza cycle last week. My complaints are the same – fatigue, achiness, nausea, constipation. Thankfully, nothing serious. My liver counts are holding well. Blood work as of May 23 showed:

Bilirubin 0.8 (normal 0.0 – 1.2)
AST 64 (normal 0-40)
ALT 61 (normal 0-40)
Alkaline Phosphatase, S 159 (norm 25-150)

The CBC was a little screwy again with the very high platelets and low whites and reds but it all appears to be part of the Vidaza treatments:

WBC: 3200 (norm 4500-10500)
Granulocytes (~ANC): 1500 (norm 1400-6500)
Platelets: 671 (norm 150-450)
RBC: 3.28 (norm 4.00-6.00)
HGB (hemoglobin): 12.0 (norm 11.0-18.0)
HCT (hematocrit): 35.8 (norm 35.0-60.0)

The only really worrisome count was ferritin. It is supposed to be 13-150 and mine was 2426! However, my serum iron levels are normal. This is something I’ll get retested and discuss with the transplant team when I see them on June 2. I’ll also have a bone marrow biopsy and lots of other blood work then, although most of the results won’t come until later.

My hair is growing, albeit slowly. I’ll post some more recent photos sometime soon.

Not too much going on here right now. The weather has turned summer hot and humid already, not much of a spring. We’re hoping for some cooler temps before the heat settles in for the rest of the summer.

Time for us to go now.

Day +159 tagline:

Mama, I’ll Sing One Song for You, Dr. Hook and the Medicine Show (no one IDed)


  1. Leslie Stratton

    I googled the tagline to find out the answer, so I’m not going to tell, in case somebody else knew without cheating. 🙂 But you’ll be interested in knowing that when I googled the tagline this page was the first search result. Sorry about the humidity. We don’t get much of a spring here either, but that’s because winter lasts so long. I still wouldn’t be shocked if it snowed at least one more time.

  2. I’d rather have the snow 🙂

  3. Linda Pourchot

    So sorry for all the yucky feelings. Hope you had a good celebration. I also cannot believe 6 months; time flies. 90+ here yesterday, today and first of week. Had absolutely NO time without heat or air conditioning. Some days both; my pocketbook feels the pinch. Love you, L

  4. Leslie Stratton

    Tagline: Eric Clapton, Runaway Train.

    And Karen, I’d rather have the snow too. I don’t do so well with humidity. Good thing I live in the West, in a high altitude desert. Hardly any humidity, and when there is some, it’s very tolerable.

  5. Almost correct on the tagline, Leslie. The song was actually a duet that was released on the other singer’s album. Do you know who it was?

  6. Karen, are your taste buds always going to be screwy, or are they going to eventually be normal again? Is this mostly a time thing? Just wondering. Love you.

  7. We just don’t know about the taste buds since we don’t know what is causing the problem. This is not typical this long after transplant.

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