Day +287: Borderline, feels like I’m going to lose my mind…

Yesterday was the first day of my 8th post transplant Vidaza cycle. In addition to my CBC, I got the results of my CMP from two weeks ago. Although not as great as my numbers have been some months, both were good:

WBC: 3000 (norm 3000-11200)
Granulocytes (~ANC): 1600 (norm 1400-9200)
Platelets: 519 (norm 150-450)
RBC: 3.76 (norm 3.90-4.90)
HGB (hemoglobin): 13.4 (norm 11.5-14.3)
HCT (hematocrit): 38.1 (norm 34.0-42.2)
Bilirubin 0.8 (normal 0.0 – 1.2)
AST 44 (normal 0-40)
ALT 35 (normal 0-40)
Alkaline Phosphatase, S 150 (norm 25-150)

So, the infection fighting white cells are in nomal range but on the low end borderline and the liver enzymes are on the high end borderline; hence, today’s tagline. The overall red cell count is slightly low and the red cells larger than normal but the hgb and hct are great. All is well, and the doctors say I’m doing great but sometimes it’s hard to chase away the anxieties over potential relapse or chronic gvhd, wondering what the future holds. Struggling with every meal is getting very tiresome, too. I’ve also developed a new symptom this month, itchy mosquito-bite-like bumps on my face and ears that last several days. They tend to recur in the same spots but with the addition of new spots each round. I currently have about 10 and am awaiting feedback from the transplant folks about how to treat. Debilitating? NO. Annoying? Yes. I guess I’m just feeling a little blue this week – of course, it happens to us all.

On a much happier note, we’re in the midst of planning our late summer/early fall cookout to celebrate the August and September extended family birthdays, 10 in all. We’re having the party on my mother’s 90th birthday, September 25, and are looking forward to a fun day with family and friends. The format will be similar to our Mother’s Day fete in the spring with us supplying the main course and everyone else bringing sides, salads, and desserts. This makes for a delicious assortment of foods and keeps the workload at a manageable level.

Day +273 tagline:
Hymn to Her, Pretenders (IDed by Cathy)

6 Comments:

  1. Hello My dear friend;
    I am truly sorry you are having a down day but this is something you deserve to do when you have to. I have been having grief days everyday since I lost Bill. It is just so lonely. Nothing to compare to what you are going through.
    Know you are in my prayers every day.
    Hugs
    Jan

  2. I finally know a tagline! I admit I had to check to make sure it wasn’t a different 1980s over blonde singer, but I was right. And, I beat my mom.
    I continue to wish the best for you. And, I wish I had project to bring me out your way.
    Best,
    Heather

  3. Karen, It is good to know that you have down days as well! Think of where we were 1 year ago. We’ve come a long way baby! Hang in there and tomorrow is always a new day. Blessings to you. Lori

  4. Hi Karen,

    Sorry to hear this is a blue week for you. Just know that you have demonstrated amazing strength, intelligence, compassion and humor since “meeting” you last year before your transplant and sometimes you are due for a break. Hoping they find the cause of the spots soon and that meals become less of a challenge.

    Big Hugs,
    Deb and Mike

  5. Hi Kids,
    I havent been on in a while and nice to see you pop up. Sorry you are blue. I am a naturally blue person and its hard to be happy
    all the time even when you are blessed. How about a pie for your moms bday? i made them today and froze them and I could bring one to work with me in the morning and you or mike swing by whenever you want. I will keep it frozen for freshness as can you. 🙂 Dana

  6. I am sorry to hear that you were going through a low spot in your recovery. Hopefully you are feeling better now.

    David and I were traveling to CO, ID and NV during your low spot. We are now back home. Kari gave birth to a new baby boy on the 26th of Sept. So I guess we have two birthdays now in September. So can we sometime join one of your parties? 🙂 New baby is Desmond David. He weighed 8 lbs and 4 oz. And of course he is a sweetheart. Simon is in love with him. He will be a very good big brother.

    Love you and hope all is well.
    Cathy 🙂

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