Day +3945: Well, it’s alright, if you live the life you please…

“Well, it’s alright, doin’ the best you can…”

So, for Saturday morning fun we went to Hopkins today. Rounds complete, the battery of 15 shots of chemo for the week is done. Nausea, spams, and general pain complicate everything. Hopkins on a weekend is a bit apocalyptic. Empty. Dead. A tad spooky kinda in line with the chemo, or maybe just my mood.

The trip down to and from city wears Karen out.
When we got home, she dropped on the bed.

“..Well, that’s just fine, that’s just fine
You’ve got to believe
And I don’t know, I don’t know
What I believe anymore ..”

Yesterday’s blood counts were down a bit more; however no transfusion required so far. Vidaza will impact the counts further. Waiting. Lots of waiting. First week after chemo is usually the most difficult, peaking around day 10. Hematology is scheduled for Wednesday at Upper Chesapeake. We are hoping the counts don’t bottom out. No guarantees, so day by day.

“… Eat it! Eat it!
If it’s getting cold, reheat it
Have a big dinner
Have a light snack
If you don’t like it, you can’t send it back
Just eat it! Eat it! …”

On the roulette wheel of side effects and complications, we seem to have landed again on red. Karen said on the ride in today, that of everything we have tried the cold Pedialyte concoction tasted the least obnoxious. Alarm! Alarm! Ok, that is kinda like taking a scoop of latrine water, throw in some of last winter’s ice melt from side of driveway, and serve it in a rusty tin can for coloring and texture, and chill for your pleasure and personal delight. Going to try and revive the ‘shake’ mixture. Thank you for all the immediate suggestion of foods, potions, and brews to try; however, her flavor sensitivity is pretty all encompassing.

Don’t worry, I didn’t go completely to the dark side. Pulled three songs from the well.
Life, moment by moment.

One Comment:

  1. I’m sending a virtual hug and love your way.


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