Day +4064: Hold me, love me, hold me, love me…

” I ain’t got nothin’ but love, babe
Eight days a week …”


…and Poof! Chemo Cycle 5 was complete, and going to Hopkins seven straight days was only complicated by a little snow. We only seem to get snow when Karen has to go to Hopkins. The weatherman is trying to break this cursed cycle tomorrow.

The Sunday chemo session was done at IPOP up on the transplant ward which was a little to Déjà Vuish. Overall, Karen handled the chemo well; both her thighs were used for the Vidaza injections in addition to the ‘normal’ shots in the belly. The shift to her legs was to try to reduce the irritation of the three injections a day versus having 21 hits to the middle. She did have the usual reaction to the chemo, and both anti-nausea and allergy meds were administered daily.

“…I never did believe in miracles
But I’ve a feeling it’s time to try
I never did believe in the ways of magic
But I’m beginning to wonder why…”


Karen’s endurance is still fairly low; but we did walk around the concourse (main loop) of Hopkins each day for steps. Her appetite has been good, and the battles with food from last September through November are a foggy memory. Life is ok again.


The post chemo follow up last Thursday (13 Jan) went mostly like anticipated:

RBC: 2.97 – down from 3.06 and still low
Hemoglobin: 9.8 – down from 10.2 and still low
Hematocrit: 30.4 – down from 32.0 and still low
WBC: 4.27 – up from 3.74 but still low
Platelets: 186 – down from 290 but still in normal range 😀
ANC: 1.77 – up from 1.66 and in normal range 😀

“…At first I was afraid, I was petrified
Kept thinking I could never live without you by my side…”

We both wish the reds would behave better and the platelets not dip as much; but the counts are good – solid. No infusions were required, and the saline junkie even skipped the offered 500ml.

The current path is to start the next cycle at the end of the month. The next bone marrow biopsy may follow on its heels as well as another discussion with Dr. Gojo on DLI …. but that tomorrow is eons away.

Today, Karen shared a piece of cheesecake (she baked last night) in celebration of her sister’s birthday. A slice of the ordinary world.

Cheers, Fellow Travelers. The best of luck to you all!

Michael

p.s. Don’t forget to name those tunes!

7 Comments:

    • Correct on both although Michael was thinking the original Gloria Gaynor – interesting cover by CAKE. I think you’d have gotten the middle song, too, if you heard it. The lyrics were familiar but I couldn’t quite place them until I looked them up.

  1. Too lazy to Google things, but I do one some lyrics are from “8 Days a Week” by the Beatles, and others are “I Will Survive” by maybe Tina Turner (just thinking her because Ike was a jerk) or maybe Diana Ross. Or The Supremes. Like I said, too lazy to Google.

  2. eight days a Week and guessed The Beatles. So that is most excellent for me. The title sounded a little familiar to me. and nothing for the last. I didn’t look any of them up. It isn’t my thing. I still would not know them.

    I have been wondering how you were doing. I came to this site a couple of times, and it said something about not working. So today my brain is working a little better and decided to try your MausMarrow and see what happens. Wala! Here I am. I hope you keep improving and get stronger. It is probably still baby steps for you now. But keep on going.

    Love you both!
    Cathy

Leave a Reply

Your email address will not be published.