9/7/12: Not much to report but I didn’t want to leave you wondering for a week.
I had a brief appointment with my ENT this morning. He seemed upset that I was going to Johns Hopkins and didn’t have much to say. I cancelled my endoscopy appointment for next week. I think it will be best for me to get everything done through Hopkins. I’m lucky to live less than an hour away from the #1 ENT hospital and #3 cancer hospital in the United States.
I had my initial consultation with a surgeon at Johns Hopkins this afternoon. Nothing concrete yet, but I had a good first impression. I feel more hopeful after talking with her. She was not able to read my PET image disc but questioned the report because of some of the uptake values. She said the spots were very small, the largest being only 1 cm. She forwarded the images to radiology (they have more experience reading “foreign” formats) and will confer with them. She also wants to get my actual biopsy slide and, if possible, do an HPV test on it.
She did a thorough exam of my neck, head, ears, nose, and throat, including a look at my throat with the scope threaded through my nose, and said it was good that the lesion is small and on the left side rather than in the center because there is less potential for function impact from surgery.
She wants me to get an MRI with contrast this week, saying this is the best diagnostic tool for the tongue base, and then wants me to meet with the multidisciplinary team next Friday to consider my case and treatment options, which may include TORS robotic surgery, radiation and/or chemotherapy. I won’t get any staging or prognosis information until my diagnosis is confirmed but I feel comfortable so far about being treated there.