Day +654: And you wanna run but somehow you just keep on stayin’ 

“Now if you’re feelin’ kinda low ’bout the dues you’ve been paying 
Future’s coming much too slow 
And you wanna run but somehow you just keep on stayin’ 
Can’t decide on which way to go 
Yeah, yeah, yeah 

“I understand about indecision 
But I don’t care if I get behind 
People livin’ in competition 
All I want is to have my peace of mind.”

9/14/12: My appointment with the multidisciplinary team has been postponed until next Friday. While perusing the Johns Hopkins website, I discovered one of their physicians, Dr. Tufaro, has expertise with both base of tongue cancer and graft-versus-host disease, a very unusual combination as far as I know. It occurred to me that he might have insights into my unique status as a transplantee. My consultation with him is scheduled for next Wednesday. He’s also a plastic surgeon and a dentist, a man of many talents. My surgeon wanted me to see the team after I’ve seen him, hence the postponement. It makes sense to have as much information as possible before making decisions about treatment.

I had my MRI Wednesday, squeezed in between a lunch of steak fajitas on the way there and freshly made dark cherry ice cream with hot fudge on the way home. I’m trying to add a few pounds in anticipation of the probable upcoming loss. I’m not claustrophobic so the MRI was a piece of cake (mmmmmm). I know a lot of people panic at the thought of being trapped in a clanging tube but I lay there peacefully, closed my eyes, and let my thoughts wander. They’ve been wandering all over the place this past couple of weeks as I contemplate the frightening array of treatments that go with head and neck cancer. I’ve decided that blood cancers are perhaps kinder and gentler. Of course, there’s the “rear view mirror” bias at work here, too. Things do tend to look better in the known past than in the unknown future.

We’re headed out of town this weekend to visit a friend. It will be great to do something fun and forget all of this medical stuff for awhile.


  1. Hi Karen;
    Have a wonderful time this wk. end.
    Keep well and safe.

  2. Hi Karen,
    I pray that the end result will be at least as successful as your last battle! Hang in there!

  3. what the f………………………..
    where the hell was I………………?
    I didnt hear about this ……………….
    Im looking through my 73 emails to see where
    they went……………Im so sorry guys.
    Im so wrapped up in my crap I missed it.
    hope all is well and you get a chance to relax
    this weekend. xoxoxoxox

  4. I am so sorry I have missed this news and your updates recently. I continue to think about you often. Best wishes.

  5. I too have not been keeping up with the updates. Gone on too many trips. At present I am with David in OR and Heather text us telling us to check out your blogs. Hence, here I am.

    I do hope and pray that they will be able to take care of all that is threatening you at this time. What an ordeal you have been put through to have to go through more. You hang in there kid. You can do it. You are one tough cookie. Love you and miss you.

    David and I are going to have to come visit you as soon as he is able to go on extended trips with good weather. Do you think our Roadtrek can get up your driveway?

  6. Enjoy your weekend Karen and Mike. You both deserve a stress-free weekend. Love you both!

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