Day +665: Must I always be waiting, waiting on you…

“I keep playing your part
But it’s not my scene
Want this plot to twist
I’ve had enough mystery
Keep building it up
Then shooting me down
But I’m already down

“Just wait a minute
Just sitting, waiting
Just wait a minute
Just sitting, waiting”

9/25/12: I’m very frustrated with how slowly things seem to move through the bureaucracy of Johns Hopkins. Is this typical of the large cancer centers?

I now have to meet with my surgeon, (the same doctor with whom I originally consulted), before I can even be put on the schedule. I asked why I couldn’t be placed on the schedule and then talk to her in the interim and was told that we have to meet face to face to discuss my treatment plan before the surgery consult form can be completed. The earliest appointment to see her is Friday. What I see is ANOTHER week gone by with this time bomb ticking away.

Is this the price of going to a prestigious hospital? I’m feeling very helpless, caught between the proverbial rock and hard place. Should I have gone with a slightly less renowned but undoubtedly competent center like University of Maryland or Greater Baltimore Medical Center? Now I’ve already invested over a month with the local ENT and nearly another month with Hopkins and no scheduled treatment yet. If I changed at this point, I’d lose even more time.

I’m not looking to you for answers today. I just really needed to vent.

As promised in my previous post, recent tag lines:
Day +571: Dentist!, from Little Shop of Horrors Soundtrack
Day +628: You Took the Words Right Out of My Mouth, Meat Loaf
Day +636: Hot Stuff, Donna Summer
Day +637: I Love Rocky Road, Weird Al Yankovic – parody of I Love Rock and Roll by Joan Jett
Day +640: 30,000 Lbs. of Bananas, Harry Chapin (IDed by Michael)
Day +644: Carry On, Crosby, Stills, Nash & Young;
…………………The Sidestep, Charles Durning in The Best Little Whorehouse in Texas
Day +647: Mother and Child Reunion, Paul Simon
Day +654: Peace of Mind, Boston
Day +659: The Rock, Harry Chapin (IDed by Leslie)
Day +661: Wonder, Natalie Merchant (IDed by Leslie, Toby, Cathy)

A big thank you to everyone for your encouragement and support and an extra thank to those who participate in our silly little music game!

6 Comments:

  1. I’m so sorry things are dragging for you in this situation. I am constantly sending positive vibes your way, and think about you all the time. I miss you lots.

  2. Sitting Waiting Wishing by Jack Johnson?

  3. Karen I know how you feel but just want to remind you it’s such an awsome center I never been there but from what I hear! A week is not long at all considering the early diagnoise and consultion which usually both of them will take a lot more than that! You don’t need the frustration over that too you are in my prayers

  4. We don’t mind the venting. We understand. It is disappointing to have to wait when a bomb has been lit. It will be extinguished. Just keep on posting.

    I also agree with Thomas on the song. 🙂

  5. Vent away dear!!! Call me anytime!

    You are going through the typical frustrations of dealing with the medical world! I totally understand!!

    Try not to get upset! I know that the “waiting is the hardest part” (Tom Petty)!

    Love you,
    Andy

  6. I feel for you. I really do. I am sorry to hear this. Sometimes bigger isn’t better but than sometimes it is. Trust your instincts. That is the best you can do.

Leave a Reply

Your email address will not be published. Required fields are marked *