I had my Hickman line removed this morning. I couldn’t have any food after midnight and had to promise I had no allergies to contrast dye or shellfish. So I was expecting anesthesia. Instead, the doctor informed me they don’t usually use anesthesia unless there’s a problem or if the procedure becomes too painful. Then he grabbed the line and yanked it out. It was done in about 2 seconds, before he could even finish saying, “Are you doing okay?”
We then hung around the hospital for my midday appointment to get blood drawn and see the doctor and nurse practitioner. I’m doing very well, aside from still fighting the nausea and a mild case of oral thrush which is easy to treat with a mouth rinse four times daily for a week or two. I’m trying a different antibiotic to see if it helps with the stomach issues.
White Blood Count: 6020.
Red Blood Count: 3.73.
The doctor now says I can get my hand fixed after I pass day +100. He wants me to start the Vidaza treatments around day +90. I’ve also been having trouble with my eyes – itchy, red, swollen – so they referred me to the Wilmer eye clinic, also at Hopkins, to get checked for gvhd.
We were able to get a same day appointment but the clinic was very busy so we were two hours late getting in to see the doctor. She was worth the wait, very apologetic about the long wait and very thorough and knowledgeable with transplant issues regarding the eyes. My eyes show no sign of gvhd but are extremely dried out from chemo, the transplant, and the dry winter conditions. I need to apply lubricating drops 10 times per day until they’re better.
It was a long day with much waiting but overall very positive. We left home at 7 a.m. in rush hour traffic and didn’t return until after 7 p.m. in rush hour traffic and with a stop at the store to fill prescriptions. We are tired and headed to bed. Goodnight all!