Day +83: …And I feel like I’ve been here before…

Another week has flown by quickly. The change in antibiotics did not help with the nausea at all so I’m going back to the Bactrim. It’s supposed to be a bit more effective in preventing PCP pneumonia than the Dapsone I’ve been taking the past 10 days. I have an appointment with my local gastroenterologist Wednesday in hopes he’ll have some ideas for my grumbling stomach.

Michael had a day off today so we ate lunch out, the first since November, not counting the dash to the Hopkins food court after my last doctor’s appointment. We went to Bertucci’s and sat at the deserted bar. The bartender remembered us from when we were last there in October for our traditional anniversary pizza. We got him to take our picture which I’ll add to the gallery later. I’ve been having a hard time finding anything that tastes good this week so was pleased that the Italian sausage soup I ordered went down quite easily.

We then headed to an appointment with my local hematolgist who I hadn’t seen since mid-November. I was greeted warmly and enthusiatically by the office and medical staff, including the chemo nurses, phlebotomists, and the doctor with hugs and well wishes all around. My blood counts were very good:

White Blood Count: 7000.
Granulocytes (of which ANC is a major component): 5000.
Platelets: 258.
Red Blood Count: 3.71.

The doctor seemed incredulous that I’ve had no fevers, night sweats, infections in the Hickman, or in general, and required no growth factor or anti-rejection drugs. He said it sounds like the transplant went as perfectly as possible. He also said I look great, and we’ll start the experimental post transplant Vidaza treatments next Monday, hoping they will help prevent a possible relapse. Michael and I are both apprehensive about how my new immune system will interact with the Vidaza. It could make my nausea problems worse or temporarily lower my blood counts. However, I feel that it is worth a try if there’s any chance that it might be effective for relapse prevention. I can always stop the treatments at any time if they are problematic. If all goes well, I’ll do them for one year.

No one identifed the taglines from the last two posts. Are you all giving up so easily?

Day +68: Do You Want to Date My Avatar?, The Guild (Felicia Day)
Day +72: Draggin’ the Line, Tommy James and the Shondells


  1. Sounds like things are going so well. Wish that ornery stomach would behave. Still including you in prayer, love, Linda

  2. Great to see the updates. My father starts his chemo and radiation tomorrow with the transplant on March 1st….I hope we follow your same path and have great results. Best of Luck to you 😉

  3. YAYAYYYY! So glad to hear that things are going so well! And, glad to hear that you and Michael are keeping it alive with Pizza and Soup! 🙂

  4. Hi, Karen! Good to hear such good news. Not too good about the nausea problem but everything else sounds great. Hope it continues. Toby

  5. Hi Kids, didnt get the last email I guess or
    my pc dropped it. Havent been to the library in a while. David and I spent the Valentine weekend very close to one another..ugh. but we were busy! yea! miss you…we have PATE!!! come get some togo and try it…sausage soup was good right? also ASP with sweet pot soup!
    miss you guys but very glad you are doing so well…:) ” when I was a child I had a fever..

  6. Had Draggin’ the Line in my head but couldn’t come up with Tommy James and the Shondells.

    This is Deja Vu by Crosby, Stills, Nash, and maybe Young.

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