“And he said, “You’re not goin’ crazy
You’re just a bit sad
‘Cause there’s a man in ya
Knawin’ ya, tearin’ ya into two”
“Silly boy, you self-destroyer
Paranoia, the destroyer
Self-destroyer, wreck your health
Destroy your friends, destroy yourself
The time device of self-destruction
Light the fuse and start eruption, yeah
“Yeah, it goes like this, here it goes
Paranoia, the destroyer
Here’s to paranoia
Paranoia, the destroyer”
5/30/2013: I’m in the midst of moving the blog to a new server and reorganizing my photo albums. The new gallery plugin is a lot more flexible than the old. I’m not done yet but didn’t want to let another month go by without an update. As some of you requested, you’ll now be able to comment on, like, and share photos as well as posts. It’s probably best to put off viewing the gallery for a week or so until I’ve finished the uploading, sorting, and captioning.
The ache in my left ear persisted for several weeks after I saw my surgeon in mid-April, so she scheduled me for an MRI on May 8. Happily, a member of her staff called me two days later with an “all clear.” The aching finally stopped about 10 days later. Given the timing, about six to seven months post surgery, I’m guessing my nerves are reknitting. I’ve noticed some twinges and tightening on my neck scars, as well, and an occasional stabbing pain underneath my chin. Truthfully, Michael and I spent a month or more of paranoia because the ear pain was so similar to what I had last year that was ultimately diagnosed as cancer. We’re relieved that Dr. G ordered the test. I received a copy of the more detailed written report last week that noted my sinus inflammation is slightly worse than on February 8 but everything else was basically the same, i.e. no evidence of disease.
My biopsy site is completely healed but the GvHD/lichen sclerosus on my back is about the same. It begins to improve with the steroid (clobetasol) and tacrolimus creams but then worsens again. The area seems to be gradually growing larger and is somewhat sore and itchy. To prevent permanent damage from the steroid, I’ve been instructed to use it two weeks on/two weeks off. I saw the dermatology PA on May 23 and will see the doctor on June 26 for another follow-up. Apparently, the condition is not likely to be cured but instead controlled in hopes of preventing/slowing further progression. I think I’ll try to get a second opinion if it doesn’t improve soon. It isn’t miserable but is rather annoying and I do worry about it progressing.
In general, all is well. We had some beautiful (to me) cool spring weather but it has turned hot again this week. My family gathered here for an enjoyable Mother’s Day on May 12, an annual tradition. Michael’s family was on vacation so only 10 attended, including us. The photo is of my mother and me at the party.
It’s hard to believe a year has passed since I met my donor (thank you again, Mary Lou!) and 2-1/2 years since my bone marrow transplant! Life is indeed good.
p.s. We saw Iron Man 3 and Star Trek Into Darkness and loved both!