8/26/2013: Good morning! It’s another unseasonably cool summer day, just the way I like it. August weather has been surprisingly nice this year, particularly after July’s heat wave. Picking up where I left off last night… Physiotherapy I forgot to mention how impressed the lymphedema therapists were with my neck…
“And we take them out and show ourselves When everyone has gone. Some are satin, some are steel, Some are silk and some are leather. They’re the faces of a stranger, But we love to try them on.” 8/25/2013: I’ve meant to write an update for quite a while but,…
7/16/2013: Today, I had a regular 4 month follow-up with my surgeon, Dr. Gourin. She peered in my mouth and ears, poked and prodded my oral tongue, did the usual through-the-nose scope to view the base of my tongue, and said everything looks wonderful. I asked if the neck numbness…
“Just own the night like the 4th of July “‘Cause baby you’re a firework Come on, show ’em what you’re worth Make ’em go, oh, oh, oh As you shoot across the sky “Baby, you’re a firework Come on, let your colors burst Make ’em go, oh, oh, oh You’re…
“And I’m wondering why my skin’s so thick…” 6/26/2013: I had a follow-up with my dermatologist today. The lichen sclerosus/cutaneous GvHD on my back doesn’t seem to be getting any better; in fact, I think it’s continuing to spread. I like my doctor but we’re running out of ideas for…
“…of all the places that I’ve left behind.” 6/6/2013: Just a quick note to let you know I finished sorting and updating the photo gallery.
“There’s a time device inside of me, I’m a self-destructin’ man There’s a red, under my bed And there’s a little green man in my head “And he said, “You’re not goin’ crazy You’re just a bit sad ‘Cause there’s a man in ya Knawin’ ya, tearin’ ya into two”…
“I’m dappled and drowsy and ready to sleep Let the morningtime drop all its petals on me… Life, I love you, all is groovy.” 4/16/2013: Typical Maryland spring, i.e., no telling what weather to expect one day to the next. Not long after our surprise snow, we had days of…
“It won’t be long before we’ll all be there with snow Snow, snow, I want to wash my hands, my face and hair with snow Snow, I long to clear a path and lift a spade of snow Snow, oh, to see a great big man entirely made of snow,…
“Everybody cries. And everybody hurts sometimes. And everybody hurts sometimes. So, hold on, hold on.” 1/16/13: Although I love winter and I love rain, today I’ll join others complaining about the weather. No question about it, forty-something (Fahrenheit) temperatures and precipitation are a bad mix. I wish it were colder…