“….I’ve made my mindTo live until I die…” Greetings from the Twilight Zone. This was going to be a very short update; queue music 🎼… well probably not. Karen’s addendum to the last blog post highlighted the continued struggle with pain management stemming from her last bone marrow biopsy site….
“Taking my message from the veinsSpeaking my lesson from the brainSeeing the beauty through the…Pain!…” 3/10/2022: The rescheduled Chemo Cycle 7 (34) started on Monday. Karen and I both had mixed emotions about it. Karen tries to schedule for late afternoon for two practical reasons: First, we hate mornings! Second,…
”…Baby sometimes, sometimes we don’t know whyAnd time seems to go by so fastIn the twinkling of an eyeLet’s enjoy it while we can…” 2/28/2022: Surprise, another post by me already (with a tagline stolen from Deb’s comment on my last post)! I saw my oncologist today. She reaffirmed that…
”…Somebody to healSomebody to haveJust to know how it feels” 2/26/2022: Just a quick update since you don’t hear from me very often. I made it through the naproxen-less week and the bone marrow biopsy. As with the previous two BMBs, I have so much fibrosis that they really didn’t…
“… It’s 9 O’clock in Denver…It’s 10 O’clock in Chicago…In Baltimore it’s 6:42…” We attempted to smooth out the roller coaster ride with an ‘impromptu’ visit to Hopkins today. Well, Karen did email her doctor last night and this morning we were summoned to see her CRNP. They are responsive….
The roller coaster ride towards Friday’s bone marrow biopsy continues…and somebody cut the brake lines! Well, it feels that way. It is frightening how quickly things shift in Karen’s condition right now or in the presentation of “normal.” To be clear, the battle between disease and chemo are a mystery…
“…When are you going to land?…” Chemo cycle six has stormed by. It started on 31 January and halted early but deliberately on 4 February. Karen and her doctor decided to return to the five day Vidaza protocol based on the status of her blood counts. The counts you ask…
” I ain’t got nothin’ but love, babeEight days a week …” …and Poof! Chemo Cycle 5 was complete, and going to Hopkins seven straight days was only complicated by a little snow. We only seem to get snow when Karen has to go to Hopkins. The weatherman is trying…
“…All the time Like a lazy flowing river Surrounding castles in the sky And the crowd is growing bigger Listening for the happy sounds…” 1/1/2022: Greetings and Happy New Year! I noticed I’m way overdue for a tagline update. In addition to catching up, I decided to give you some…
“…Looking out for a better dayWhen it seems like there’s no escapeTake me to my happy place…” TV time…..’Gloom, despair, and agony on me, Deep, dark depression, excess’ …opps, sorry, Click! … ‘but if you close your eyes’…Click!..Click!…Click! …’525,600 minutes, 525,000 moments so d’ …Click! …just channel surfin’ to find…