Day +3732: The waiting is the hardest part…

“Every day you see one more card
You take it on faith, you take it to the heart.
The waiting is the hardest part…”

2/17/2021: My fifth (26th) Vidaza (azacitidine) cycle was last week, pretty much a repeat of the previous four. I’m still weak and itchy all over but otherwise feeling great as my blood counts continue to improve. My red blood count is still slightly low but white count, hematocrit, and hemoglobin in normal range and platelets high. We went for a short walk yesterday, our first in a long time. I should be doing more but procrastination, laziness, and newfound lack of tolerance for cold have kept me indoors.

After more than two weeks, I’m still awaiting cytogenetic results from my bone marrow biopsy. I’ve never had to wait this long. I emailed the CRNP yesterday but received no reply. That’s unusual for her. With each passing day, my mind conjures new possibilities. Did they get an insufficient sample for analysis? Did the results get misplaced? Are the results unfavorable and she doesn’t want to share them before reviewing with Dr. J? Are they no longer interested in me as a patient because of my poor prognosis?

Only time will tell…I’ll post more when I know more.

xoxo, Karen

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