Day +3985: I could say life is just a bowl of Jell-O…

And appear more intelligent and smart,
But I’m stuck like a dope
With a thing called hope,
And I can’t get it out of my heart!

Today’s counts in contrast to Monday:

WBC – 3.20 down from 3.44
RBC – 2.95 up from 2.27
Hemoglobin – 9.0 up from 7.4
Platelets – 22 up from 18

So, the saline junkie tackled the nurse, and is currently receiving 1000ml of saline (the good stuff!). The remainder of the counts, although mixed, were above the infusion thresholds. No blood or palettes required. It is impossible to say if this is a response to the chemo working, or merely the counts recovering slightly from being less impacted by the chemo. The vidaza does initially drive counts down, so based on the past we are looking for stair step improvement over the cycles. One can hope.

“I feel wonderful because I see
The love light in your eyes
And the wonder of it all
Is that you just don’t realize how much I love you

Karen dipped into the medicine show for oxycodone, anti-nausea, laxatives, etc. and had a fairly good day for her birthday (26 Oct) including real food! A Mexican dinner. A few brief visits from family and friends. The cats are enjoying the birthday balloon tethers!

Unfortunately, the price for feeling semi-normal for a few minutes seems two plus day of aggravated misery. The nausea, constipation, spasm, general pains, and food struggle returned with a vengeance and one can’t really reuse the medicine show unless the objective was to try zombie like sleep and downward spiraling weakness.

Karen took Zofran and THC drops in order to brave the hour trip to Hopkins. She is avoiding the normal attempts at eating and drinking while we are at Hopkins hoping to head home quickly. The bowels are just that tricky.

“Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
Today is where your book begins”

On Monday, we repeat the Hopkins travel and Karen will see Dr. Gojo. Thursday should be a repeat of today. (hopefully minus a few maladies). Next Friday is the scheduled bone marrow biopsy with Meghan. A bit of anxiety.

Then chemo cycle three is looming on the door step.

Waiting …still lots of waiting.

Time for the second cup of coffee of the day – we’re home.

One Comment:


    I missed some updates, but I think I have my email fixed again.

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