Day +4018: Give me light…

“… Give me life
Keep me free from birth
Give me hope
Help me cope, with this heavy load …”

Happy 11th Re-Birthday Mausi!
Thank you Mary Lou!

So, what is your Super Power?
Ha, Mary Lou has that beat! I mean aside from being perfect (match), the “Thrill me to the Marrow” donation is now ending its eleventh season and moving into year 12. Give me Life – just three little words, to describe the gift of buying, borrowing, or stealing irreplaceable time from death’s doors.


Thank you also to all the medical personnel: nurses, technicians, doctors, researchers and staff, without whom any progress or discovery would ever have been made.

Thank you to the kindred spirits who sacrificed all so others may get a spin at the wheel of life.

“…If you’re going through hell
If you’re going through hell, keep going…”

Well, Karen is a week away from knocking on the door of Chemo cycle four (31 in totality). The current state of the disease is frustrating, scary, but mostly perplexing. The rules change day to day, moment by moment.

The counts from the past two Hopkins visits (Wednesday/ Monday):
Platelets: 65 / 130
WBC: 4.12 / 3.05
ANC: 1.85 / 0.9
RBC: 3:03 / 2.80
Hemoglobin: 9.5 / 8.8

It is a bit like a rollercoaster ride in the Twilight Zone. Dr. Gojo and Karen met Monday and reviewed and recounted the turns and twists, and green lighted Vidaza cycle four without change to the current protocol. Dr. Gojo possesses the common sense and sound judgment to understand addressing the quality of life issue is essential in the treatment plan evolution. At this point it really does not matter if it is the cancer, chemo, fibrosis or goblins that are spawning the nausea, sporadic pains, distressed taste – the important thing is to get Karen feeling better. Dr. Gojo cleared use of Naproxen this week to hopefully reduce the pains, inflammation and spams. No drug is purely beneficial – the reduce “pain” set of side effects seem to be scripted for Alice’s stay in Wonderland.

Tylenol -> Liver
Naproxen -> Blood Count / Platelets.
Aspirin -> Blood … need those platelets to be able stick together!
Oxycodone -> Shuts down the bowels; along with the long term joys.
Lyrica -> Rapid dependency and side effects mimic symptoms.
THC -> Lethargy / Hangover.

…. kinda like spinning the cylinder during Russian roulette…

Karen is hoping for a few good days and that the counts don’t get driven down further. Fingers crossed.

Dr. Gojo also recommended getting flu shot and Moderna Covid booster now that her counts are better and her immune system is starting to improve. Karen got her flu shot today and will get her booster between Christmas and New Year, a week before January chemo.


“…So bring your good times and your laughter too
We gonna celebrate your party with you..”

Happy Re-Birthday Mausi.

Love you,

One Comment:

  1. Celebrate good times, come on!
    Hugs my friend.

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